It's hard to believe that in less then a month my baby boys will be having birthdays. They will be 7 and 3. Waylon will be 7 on August 14th and Jeffrey will be 3 on the 16th. UNREAL how the time has passed so quickly!!!
We are planning a Super Mario Brothers birthday party. The boys are really excited. They have costumes and are SO CUTE in them!!!!
We haven't gotten into much this summer. It's just been too danged hot! It's been pushing 100 some days and awful humidity, and every since Waylon has been sick, he can't handle the heat very well.
Just about every evening after dinner we take our "rhino" out for a ride up the other 'fork' in the road we live on. We have seen some interesting things along the way. Like:
Yes, that is a bear track next to Waylon's foot!!!!
A softer kind of wildlife!!!
An abandoned house.
A fungus among-us.
And some pretty wild flowers!
Waylon did have a clinical appointment this month, and he actually made it to it!!! He hasn't been to one since April, he has been sick and inpatient every month so there has been no need to go for a clinical. So, I am very happy to say we made the trip to Pittsburgh and back last week!!! He is still holding steady at 49 pounds, I sure wish we could get him to gain some weight and keep it on. I was happy to hear the doctor say he was "spectacular." He said he was a very healthy short gut child! Very good music to my ears!
I have a tendency to over think, and over worry and over stress about everything, so this made me feel a tiny bit better! I did have a list of questions to ask, one of which was generated from "test tube babies" and the cloning of sheep. If those types of things can be done, why can't we create some small intestines for children like Waylon. This got an eyebrow raise from the doctor and he said, they are already working on it! This prompted me to come home and start looking for stuff online. I can't find much information of Stem Cell research and Short Gut Syndrome, but I found a few articles. The doctor did say it was in the VERY VERY early stages. So it is something to keep an eye on. Hopefully Waylon will get his transplant before then, but I hope and pray that it can help save the lives of MANY MANY of the short gut children to come!
I took a self portrait and I really like the way it turned out. . . Wanted to share it with you all. Have a wonderful day!!!!
